Monday, March 22, 2010

World Down Syndrome Day... 3/21



This past Sunday was World Down Syndrome Day. 3/21 (3 of the 21st chromosome) The Down Syndrome Guild hosted an event at Crown Center. They had lots of fun activities for kids along with a play area. Jocelyn played a little with some of the kids but mostly I think she was in a little awe with all the people and things going on. They had booths for different youth and adult groups that are available in KC. They had a few adults who have Down syndrome give talks about their lives and accomplishments. It was very inspiring to hear them talk. There was a booth set up for a line of glasses that is made especially for kids with Down syndrome called Erin's World. I really enjoyed talking to the lady about the different glasses. Children's Mercy, where Jocelyn's doctor's office is, now carries this line. I am excited to get to try them on later on this week. As Jocelyn gets older and grows, it is apparent the difficulties kids with Ds have in fitting glasses. Between their wider faces and flat bridge of their noses, getting glasses to fit well can be challenging. We had a great time at the festival. Jocelyn received many compliments on how adorable she is. We are definitely looking forward to next years events.


In addition to the World Down Syndrome Day, John C. McGinley has an organization about stopping the use of the "r word." In case you didn't know, John C. McGinley is a parent of a child who had Down Syndrome. He is an actor has been in a number of roles but is most famous as Dr. Cox in Scrubs. I urge everyone to log onto this website and sign up for the pledge to SPREAD THE WORD TO STOP THE WORD!

Spring Break









A couple of weeks ago, Jocelyn and I went back to Hays for a few days to visit family. My brother Sean and his kids Jude and Olive rode back with us. Both Alex and Malindi had to work. We had a great time playing all day long and staying up late partying. My aunt Jen and uncle Gus came back with their two girls, Kate and Emma. It was a great weekend and with not much going on so we were able to relax and hang out with everyone. Jocelyn is very close to walking. So for now, she is a crawling machine. She is so fast as well. When she wants to go somewhere, she gets on it. My parents have a circle around the stairs that is between the hall way, dinning room and kitchen. The kids love to run around and scream. Jocelyn did her best trying to keep up with Olive and the other kiddos. It is going to be crazy once she is running around with them. We thought it was wild this past weekend; I'm not sure that we have seen anything yet.








Other than our trip, we have just been hanging out at home and in Baldwin at Sean and Malindi's house. Jocelyn is still trying to get over a cold that has been lingering around for about 3 weeks now. Hopefully she will be kicking it soon.








This week we are set to go back to the eye doctor for a check up and to order new glasses. They will probably take about a week or so to get in so I will post new pictures when we get them.