Tuesday, June 8, 2010

Lots of Updates


















Yes, it has been a very long time since I've updated the blog. It's amazing how quickly time flies in the summer time. We have had quite a few adventures over the past couple of months. At the end of April, we went back to Hays after my grandma Mickey (Jocelyn's great grandma) passed away. While it was a difficult time for everyone, it was still nice seeing our entire family and spending time together. We did spend a little time in Olathe over the past few weeks, believe it or not. Alex, Jocelyn and I along with Kevin and Kelly went to a KU baseball game. It was a little chilly but she appeared to enjoy it. She was a pretty good trooper for most of the game and ended up falling asleep around the 5th inning. We also attended our friends' daughter's 1st birthday party. Aubrey, Chuck and Emily's daughter, celebrated her 1st birthday in Lawrence. There were a lot of kids there. Jocelyn tried to keep up with them but was mainly trying not to get run over. We did make one trip back to Hays though for Aunt Bridget's graduation. She graduated from Fort Hays State. We had a good time down at the swinging bridge park. Jocelyn even went down the slide a few times. The past few times she has been on a slide she did not enjoy herself. This time, she even cracked a smile or two. Her and Olive played most of day. They really enjoyed being pulled around in the wagon. Over Memorial Day weekend, we had a BBQ. My brother Sean and his family came up from Baldwin. Jocelyn wasn't feeling so well that day and did party like she usually does. None the less, it was still a really enjoying weekend. We did manage to go swimming on that Monday. Unfortunately, the most shallow portion of the pool was 3 feet deep so Jocelyn wasn't able to get down and play. She did well for about an hour but after that, she didn't want to be held any longer. I think she would have a great time in a zero entry or a beach type setting. We are planning on setting her up for swimming lessons in July. This past weekend, we had Jocelyn, Aubrey and another 16 month old boy, Tucker, (Alex's friend's son) at our house during a BBQ. It was like the attack of the 1 year olds. I think all the toys were out in the living room. It was fun to see them play and interact with each other. Jocelyn definitely slept well that evening. We also went to Old Shawnee Days parade with our babysitter Sarah and her family. Jocelyn was pretty mesmerized by the horses and small cars. There was a loud train that when it blew its horn, Jocelyn would scream at it. It was really funny.








Jocelyn has also been going to volleyball with Alex and I on Thursday evenings. You should see the mess she makes. There is sand EVERYWHERE!. She even lays down so it gets all in her hair and sticks very well with her sunscreen. She is pretty quick so we constantly have her pull her back off the courts. Who knows where she will run off to when she is walking. I'm gonna try to take some pictures next week when we go so I can post them. They are too funny.








Jocelyn continues to become more independent every day. She is now climbing up on furniture without help. She can motor up and down stairs without any trouble. She is super close to walking. She is really close to taking her first couple of steps. I know we will be in for trouble at that point. We thought she was hard to contain now, I can only imagine when she is more mobile how she will take off. She is also become more vocal and communicating more as well. She can sign all done, up, milk, more and we are working on please. She can even make the sound for a cow.









So last week Jocelyn finished her 20 day course of anti-biotics. Over the past couple of months, Jocelyn has had this persistent nasal congestion that she can't seem to kick. She has also developed sleep apnea. She is constantly waking herself up at night to catch her breath. There is a high percentage of kids with down syndrome being affected by sleep apnea. There are a few reasons why including low tone in her air way so it does not remain open and enlarged adenoids and tonsils. So we went to see our ENT in May. He said that she has chronically enlarged tonsils. It was not strep throat though. He thought if we could keep her on a longer regimen of anti-biotics, it would clear up her chronic sinus infection and decrease the inflammation in her tonsils and adenoids. If it doesn't clear up, then we may have to consider surgically removing her tonsils and adenoids. He would like to wait until she is three though because it is easier post op with eating and drinking. So we go back in a couple of weeks for a check up. Hopefully it will be better and we can avoid surgery for now.





















I think that about catches up through the month of May. I'll be sure to continue updating because we have lots of plans coming up.