Down Syndrome Clinic Appointment

On Wednesday, April 1, Jocelyn had her first appointment at the Down syndrome clinic at Children's Mercy Hospital. The clinic is set up for kids with Down syndrome to come once a year and see a variety of specialist. It took all morning but was worth it. Jocelyn, my mom and I went on Wednesday. We got to see a developmental pediatrician, an audiologist, speech therapist, occupational therapist, nutritionist, social worker and had some lab drawn. They like to check her thyroid because kid's with Ds can have an abnormality with their thyroid. Also, they check her blood for any changes in her white blood cell count which may indicate leukemia (it is also more prevelant in kids with Ds). When they poked her with the needle, she didn't even flinch. No tears or whimpers. She was amazing. She had a hearing screening and passed with flying colors. She was so good. They said everything is going good. She is growing very well and progressing developmentally well too. While we were sitting in the waiting room, we started talking to other people that were there. There were two other babies born very close to Jocelyn that were there too. Both were very tiny. Jocelyn weighs more than the baby that was there who was 8 months old! Also, every single kid there had some sort of heart problem. Most either had surgery or are still waiting for it. It really showed us how truely lucky we are that Jocelyn is so healthy. We are going to go see an ENT specialist though since she has had two ear infections already and is constantly congested. Other than that, we will just continue to follow up with our regular doctor and go back to the DSC when Jocelyn is 18 months old.