I took this video the other day of Jocelyn in her swing. She loves it! We swing in it almost every night (if it's not too hot of course). One night, she actually fell asleep in it. Enjoy!
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by Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience, to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. Michelangelo's David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland ?!?" you say. "What do you mean Holland ?? I signed up for Italy! All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around... and you begin to notice that Holland has windmills... and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say: "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things... about Holland.
Welcome to Baby Jocelyn's page. This website was started to share with all of our friends and family the events happening in our lives. We hope you enjoy!
If this is your first time visiting our site, please read the first 2 entries in January if you want to learn more about the beginning of our journey.
If this is your first time visiting our site, please read the first 2 entries in January if you want to learn more about the beginning of our journey.
About Me
- BabyJ's Mom
- I currently live with my husband, Alex, and our adorable little girl who is 1 years old, Jocelyn. We live in Olathe, KS. Both Alex and I work full time. Alex owns his own electrical and low voltage company and I am an orthopedic physican assistant. The rest of our time is spent trying to keep up with Jocelyn. She is growing up so fast. Every day something new happens. She is the pride and joy of our lives.
Informational Links
Portrait Studio
Followers
John C. McGinley's Message
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STEP UP FOR DOWN SYNDROME
Thank you to everyone who came out or donated to the Down Syndrome Walk. In our first year, we raised almost $2,000! It was a great time that was had by all. We are very much looking forward to next year. We hope that we will be able to double our donations next year and the number of walkers.
Be on the look out this summer for more information about the 2010 walk!
Thank you to everyone who came out or donated to the Down Syndrome Walk. In our first year, we raised almost $2,000! It was a great time that was had by all. We are very much looking forward to next year. We hope that we will be able to double our donations next year and the number of walkers.
Be on the look out this summer for more information about the 2010 walk!
Welcome To Holland
by Emily Perl Kingsley
I am often asked to describe the experience of raising a child with a disability - to try to help people who have not shared that unique experience, to understand it, to imagine how it would feel. It's like this...
When you're going to have a baby, it's like planning a fabulous vacation trip - to Italy. You buy a bunch of guide books and make your wonderful plans. The Coliseum. Michelangelo's David. The gondolas in Venice. You may learn some handy phrases in Italian. It's all very exciting.
After months of eager anticipation, the day finally arrives. You pack your bags and off you go. Several hours later, the plane lands. The stewardess comes in and says, "Welcome to Holland."
"Holland ?!?" you say. "What do you mean Holland ?? I signed up for Italy! All my life I've dreamed of going to Italy."
But there's been a change in the flight plan. They've landed in Holland and there you must stay.
The important thing is that they haven't taken you to a horrible, disgusting, filthy place, full of pestilence, famine and disease. It's just a different place.
So you must go out and buy new guide books. And you must learn a whole new language. And you will meet a whole new group of people you would never have met.
It's just a different place. It's slower-paced than Italy, less flashy than Italy. But after you've been there for a while and you catch your breath, you look around... and you begin to notice that Holland has windmills... and Holland has tulips. Holland even has Rembrandts.
But everyone you know is busy coming and going from Italy...and they're all bragging about what a wonderful time they had there. And for the rest of your life, you will say: "Yes, that's where I was supposed to go. That's what I had planned."
And the pain of that will never, ever, ever, ever go away... because the loss of that dream is a very, very significant loss.
But... if you spend your life mourning the fact that you didn't get to Italy, you may never be free to enjoy the very special, the very lovely things... about Holland.
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